Articles

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Boston Walk to Support Marfan/EDS Research

Posted on June 18, 2017

By Times Staff By John Lynds On Sunday hundreds turned out for the Marfan Foundation’s Annual Walk for Victory for Marfan/Ehlers-Danlos Syndrome on the Boston Common. The Boston Walk for Victory helps raise awareness and advance the life-saving work of The Marfan Foundation. Just before she turned 3-years-old, Beth Villani’s daughter, Hannah was diagnosed with […]

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Radio Broadcast – Woodman Tower Lights Up for May EDS Awareness Month

Posted on May 28, 2017

    By MICHAEL LYON • MAY 15, 2017 The Woodmen Tower  in Omaha, NE, was lit up in black and white “zebra” stripes Monday night, 5/15 for Ehlers-Danlos Syndrome (EDS) Awareness Month, which takes place in May.     This iheart radio show in Omaha, NE  featured Wendy Hamilton, Colleen McCoy, leaders if the Nebraska […]

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2017 EDS Learning Conference Registration is Open

Posted on May 26, 2017

  The Ehlers-Danlos Society has scheduled the 2017 Ehlers-Danlos Society Global Learning Conference, September 7th-9th, Bally’s Hotel in Las Vegas. Registration details, including prices, are on the link below. Click here for registration information. We will be a conference sponsor again for the 6th year.   Please visit with us at our EDS Awareness booth. Contact […]

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What Does this Logo Mean?

Posted on May 4, 2017

Have you ever looked at logos and considered that they may have a hidden meaning or inspiration behind their creation? Our favorite brands may hold hidden messages behind the fancy artwork. To uncover the meaning embedded in the EDS Awareness logo, we asked John Ferman, the co-founder of EDS Awareness (Chronic Pain Partners). Introduction John […]

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Kristin Means Discusses Her Journey with EDS

Posted on May 4, 2017

Many Ehlers-Danlos Syndromes (EDS) experts believe that its prevelance is higher than once thought. Estimates range from 1 in 500 to 1 in 100.   Dr. Fraser C. Henderson, Sr., MD, comments in this video that “1 in 10 Americans have hypermobility connective tissue disorders. That’s 30 million people – and we don’t know exactly […]

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How long until you received a proper diagnosis for EDS?

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