Articles

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2017 EDS Learning Conference September 7th – 9th

Posted on March 20, 2017

  Save this date! The Ehlers-Danlos Society has scheduled the 2017 Ehlers-Danlos Society Global Learning Conference, September 7th-9th, Bally’s Hotel in Las Vegas. CME credits will be available, so bring your favorite medical providers. Registration details, including prices, will be available soon. We will post Registration details on our site when they are available. We will […]

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Dr. Tinkle Edits EDS Special Supplement for American Journal of Medical Genetics

Posted on March 18, 2017

Dr. Tinkle Edits Ehlers-Danlos Sydrome Special Supplement for American Journal of Medical Genetics.   Dr. Tinkle also served as an author / co-author for one-third of the papers in the supplement: The Ehlers-Danlos Syndromes: Reports from the International Consortium on the Ehlers-Danlos Syndromes PRZen / CHICAGO — Left Paw Press congratulates Dr. Brad T Tinkle […]

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New Clinic for Ehlers-Danlos Syndrome in Ontario

Posted on February 27, 2017

The Canadian Press Published Monday, February 27, 2017 The Ontario government said Monday that it was improving access to specialized care for people living with rare diseases. Health Minister Eric Hoskins announced the opening of a new clinic for people with Ehlers-Danlos Syndrome and the expansion of clinics for those with inherited metabolic disorders and […]

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Telling My Teammates “I Have Ehlers-Danlos Syndrome”

Posted on February 25, 2017

By KYLE GRABOWSKI @kylegrbwsk NORTHAMPTON — Hannalise Rivera-Lovett jumped to intercept a pass. She was playing in a summer league basketball game at JFK Middle School between her sophomore and junior seasons to stay fresh for the winter. Everything above her knee went one way, everything below went the other. The torque caused a subluxation […]

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How long until you received a proper diagnosis for EDS?

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